Sorry for the long post that follows here and I hope people don’t mind it being in general blades chat.
Earlier this year my first child was born at Jessops. We were sent home the next day and all was well but overnight he became limp and cold and wasn’t waking to feed so we rushed into the A+E at the children’s hospital. We were put on the neonatal surgical unit by morning, once the staff at A+E had got him stable.
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Everyone in the NSU were amazing, both in looking after our baby and in supporting me and his mum. Despite living about 5 minutes drive away we were put up in Magnolia House which is run by The Sick Children’s Trust. This is an amazing facility that allowed me and my partner a space to sleep, shower, prepare food etc
Whilst he was initially treated for a suspected infection, the team at the hospital started to suspect he might have a problem with his liver and after a week and a half in Sheffield we were transferred to Leeds General Infirmary.
At five and half weeks he miraculously received a life saving new liver from an anonymous living donor after being on the super urgent transplant list for four days following a sudden deterioration.
The transplant was a success but the trauma of such a large operation on such a small child caused damage to his kidneys and he has been receiving constant dialysis at Leeds ever since.
All this time The Sick Children’s Trust have continued to provide us with accommodation just over the road from the hospital, allowing us to be there for our son as much as possible.
They are a charity that rely on donations to provide families like ours with a bed, shower and kitchen whilst their children are in hospital.
This year, my brother in law (to be) is running the London Marathon to raise money for The Sick Children’s Trust.
I’d be so grateful if people could donate to such an amazing cause and show the same generosity that we’ve been shown by the charity.
Help Ian Butler raise money to support The Sick Children's Trust
www.justgiving.com