Multiple Sclerosis - Charity Walk

[SwitchBLADE Smiles]

Morning kids - apologies if this isn’t permitted on the forum, but I’m looking to drum up a little bit of support in aid of the MS Society.

In July last year, my partner (33 at the time) complained of having numbness in her feet after coming home from work. As irritating as it must have been, we kind of brushed it off hoping it would be fine the next day. It wasn’t and if anything it was getting worse.

Several hundred phone calls to the GP (just to get through to them…) a conversation with 111 and an A&E visit to Derby resulted in nothing but more confusion and frustration with nobody seemingly willing to hear what she had to say - we were sent home with blood thinners…

A week went by and the numbness got worse, seemingly travelling up her legs. Back to A&E we go, but this time a different hospital. 5 weeks, 2 MRI scans and a lumbar puncture later (that was difficult to watch… can’t imagine what it must feel like!) - a confirmed diagnosis of Multiple Sclerosis was made.

For those who don’t know what MS is, in short - MS is a condition where the body’s immune system attacks itself. Specifically a protective layer that surrounds your spinal cord called the myelin sheath. Eventually, it will be damaged resulting in scarring (Sclerosis in medical terms).

The scarring slows signals sent by the brain down the nerve motorway of the body (spinal cord) resulting in various symptoms such as numbness.

Anyway, on Saturday - my partner, the kids and I will be participating in a 5k MS walk to raise funds for the MS Society. We would massively appreciate it if any donations could be made, no matter how small - every penny can make a difference.

Burcu's fundraiser for Multiple Sclerosis Society

Help Burcu Bay raise money to support Multiple Sclerosis Society

www.justgiving.com

Again, apologies if this is against forum rules. I have almost certainly not put it in the correct area, but just wanted as many eyes on as possible

Cheers,

Switch x

 

[ekke287]

Donated buddy, great cause.

 

[Blade56]

Morning kids - apologies if this isn’t permitted on the forum, but I’m looking to drum up a little bit of support in aid of the MS Society.

In July last year, my partner (33 at the time) complained of having numbness in her feet after coming home from work. As irritating as it must have been, we kind of brushed it off hoping it would be fine the next day. It wasn’t and if anything it was getting worse.

Several hundred phone calls to the GP (just to get through to them…) a conversation with 111 and an A&E visit to Derby resulted in nothing but more confusion and frustration with nobody seemingly willing to hear what she had to say - we were sent home with blood thinners…

A week went by and the numbness got worse, seemingly travelling up her legs. Back to A&E we go, but this time a different hospital. 5 weeks, 2 MRI scans and a lumbar puncture later (that was difficult to watch… can’t imagine what it must feel like!) - a confirmed diagnosis of Multiple Sclerosis was made.

For those who don’t know what MS is, in short - MS is a condition where the body’s immune system attacks itself. Specifically a protective layer that surrounds your spinal cord called the myelin sheath. Eventually, it will be damaged resulting in scarring (Sclerosis in medical terms).

The scarring slows signals sent by the brain down the nerve motorway of the body (spinal cord) resulting in various symptoms such as numbness.

Anyway, on Saturday - my partner, the kids and I will be participating in a 5k MS walk to raise funds for the MS Society. We would massively appreciate it if any donations could be made, no matter how small - every penny can make a difference.

Burcu's fundraiser for Multiple Sclerosis Society

Help Burcu Bay raise money to support Multiple Sclerosis Society

www.justgiving.com

Again, apologies if this is against forum rules. I have almost certainly not put it in the correct area, but just wanted as many eyes on as possible

Cheers,

Switch x

Empathic to the cause. My wife was diagnosed in 2000. I had to take the Sheffield Healthcare Authority to a tribunal due to ‘postcode lottery funding’ to get her the treatment needed. We had to put the house up for sale to pay for the treatment but long story short we won the tribunal and not only got funding going forwards but we were reimbursed what we had already paid out.

Done

 

[SwitchBLADE Smiles]

Donated buddy, great cause.

Appreciate the support, thank you!

 

[SwitchBLADE Smiles]

Empathic to the cause. My wife was diagnosed in 2000. I had to take the Sheffield Healthcare Authority to a tribunal due to ‘postcode lottery funding’ to get her the treatment needed. We had to put the house up for sale to pay for the treatment but long story short we won the tribunal and not only got funding going forwards but we were reimbursed what we had already paid out.

Done

Glad to hear you got there in the end! You’re absolutely correct re: the post code lottery - We’re lucky enough to be close to one of the top MS departments in the country in Nottingham - the big issue we had was getting medical professionals to listen in the first place. I was also quite alarmed by how common MS actually is!

Hope Mrs B56 is doing well and that you’re getting some support too. Well aware of how important that is.

 

[BladeinCottingham]

Donated, good luck with the treatment

 

[reedy63]

Donate Gladly Best Wishes to You.

 

[reedy63]

I sent a Donation Glady Best Wishes to You.

 

[Jon Bon II]

Done. Hope you all enjoy the day. I did the Race For Life 'Very Muddy 5k' on Saturday in memory of my late missus. It was great fun. A bit emotional but great fun.

 

[wak1889]

Morning kids - apologies if this isn’t permitted on the forum, but I’m looking to drum up a little bit of support in aid of the MS Society.

In July last year, my partner (33 at the time) complained of having numbness in her feet after coming home from work. As irritating as it must have been, we kind of brushed it off hoping it would be fine the next day. It wasn’t and if anything it was getting worse.

Several hundred phone calls to the GP (just to get through to them…) a conversation with 111 and an A&E visit to Derby resulted in nothing but more confusion and frustration with nobody seemingly willing to hear what she had to say - we were sent home with blood thinners…

A week went by and the numbness got worse, seemingly travelling up her legs. Back to A&E we go, but this time a different hospital. 5 weeks, 2 MRI scans and a lumbar puncture later (that was difficult to watch… can’t imagine what it must feel like!) - a confirmed diagnosis of Multiple Sclerosis was made.

For those who don’t know what MS is, in short - MS is a condition where the body’s immune system attacks itself. Specifically a protective layer that surrounds your spinal cord called the myelin sheath. Eventually, it will be damaged resulting in scarring (Sclerosis in medical terms).

The scarring slows signals sent by the brain down the nerve motorway of the body (spinal cord) resulting in various symptoms such as numbness.

Anyway, on Saturday - my partner, the kids and I will be participating in a 5k MS walk to raise funds for the MS Society. We would massively appreciate it if any donations could be made, no matter how small - every penny can make a difference.

Burcu's fundraiser for Multiple Sclerosis Society

Help Burcu Bay raise money to support Multiple Sclerosis Society

www.justgiving.com

Again, apologies if this is against forum rules. I have almost certainly not put it in the correct area, but just wanted as many eyes on as possible

Cheers,

Switch x

I got an email about this at work, didn't realise her partner was a blade

 

[SwitchBLADE Smiles]

Done. Hope you all enjoy the day. I did the Race For Life 'Very Muddy 5k' on Saturday in memory of my late missus. It was great fun. A bit emotional but great fun.

Appreciate the support. Hope you’re keeping well love x

 

[SwitchBLADE Smiles]

I got an email about this at work, didn't realise her partner was a blade

For my sins, yes. My dad’s fault really, but I appreciate it all the same . She’s a southerner but I’ve successfully converted the boy into a blade!

 

[Flippity Gibbert]

I’m going to say what everyone is thinking.
“Switch, you are punching well above mate”
Give your brave lady a hug from me x

 

[HighfieldBlade]

Donated

 

[robbiez666]

I've chucked some money in. Good luck with it.

 

[SwitchBLADE Smiles]

I’m going to say what everyone is thinking.
“Switch, you are punching well above mate”
Give your brave lady a hug from me x

Im well aware pal

 

[SwitchBLADE Smiles]

Donated

I've chucked some money in. Good luck with it.

Thank you both so much! The Mrs has been welling up that strangers from “the experts forum” have been contributing

 

[Foody]

What an amazing cause and well done. Donated as its a condition I'm all too familiar with.

My Mum was diagnosed with MS while still in her 20's. After that she had me, raised both me and my Brother. Went to uni, qualified as a teacher and started a new career. She never let it hold her back. With the treatments now it really doesn't have to hold anyone back like it once did. I'd love to join, but sadly for now will settle for donating.

Best of luck for your journey, but as someone who's seen it first hand modern medicine is truly a marvel. My Mum was genuinely fitter at 63 than 43, all thanks to the break thoughs in MS treatment. If you are Sheffield based The Hallamshire is one of the best hospitals in England for MS treatments and they have a couple of specialist consultants who are really well recognised.

All the best

 

[SwitchBLADE Smiles]

What an amazing cause and well done. Donated as its a condition I'm all too familiar with.

My Mum was diagnosed with MS while still in her 20's. After that she had me, raised both me and my Brother. Went to uni, qualified as a teacher and started a new career. She never let it hold her back. With the treatments now it really doesn't have to hold anyone back like it once did. I'd love to join, but sadly for now will settle for donating.

Best of luck for your journey, but as someone who's seen it first hand modern medicine is truly a marvel. My Mum was genuinely fitter at 63 than 43, all thanks to the break thoughs in MS treatment. If you are Sheffield based The Hallamshire is one of the best hospitals in England for MS treatments and they have a couple of specialist consultants who are really well recognised.

All the best

Thank you so much! Completely agree re: the treatments available today. Especially if identified early enough, MS can be managed properly so to not completely ruin your life.

We’re not Sheffield based but our neurologist in QMC Nottingham is first class. Full infusion number 1 booked in for Monday!

 

[Suomi_Blade]

MS is a swine, i know this from having it myself, so any amazing charity work anyone does the world over is more than welcomed!

Especially if identified early enough, MS can be managed properly

Totally agree on this, first opportunity you get to take DMT's do it, i regret not taking them early enough when i had the opportunity to do so, I'm paying for it a bit now.

Best of luck for your journey, but as someone who's seen it first hand modern medicine is truly a marvel.

It is good, that's for certain, I went down the Cladribine (Mavenclad) route, not had any problems, my ms is under control in its current state. Assuming the prof is still at the hallamshire hospital you would be in the hands of a world leading specialist.

 

[HillmortonBlade]

My Nan had MS, well done you and yours SwitchBLADE Smiles. Donation given.

 

[Fatlad666]

Donated great work sir. Wishing you and the family all my love and support . From Mr +Mrs fatlad

 

[Hodgesleftpeg]

Donated.... such A worthy cause... ive raised money before for them previously. My wife got diagnosed with MS 20 years ago.... monthly visits to the hallamshire ever since..

Good luck mate

 

[SwitchBLADE Smiles]

My Nan had MS, well done you and yours SwitchBLADE Smiles. Donation given.

Donated great work sir. Wishing you and the family all my love and support . From Mr +Mrs fatlad

Donated.... such A worthy cause... ive raised money before for them previously. My wife got diagnosed with MS 20 years ago.... monthly visits to the hallamshire ever since..

Good luck mate

Thank you all so much. Got to admit I was a little apprehensive about posting this on here, but the responses and support have been kinda overwhelming.

I really appreciate everyone’s support and kind messages

 

[HillmortonBlade]

Thank you all so much. Got to admit I was a little apprehensive about posting this on here, but the responses and support have been kinda overwhelming.

I really appreciate everyone’s support and kind messages

Hardly know anyone on here (well, I might but they’re well hidden by their Forum names), but we all have much in common and, it seems to me, part of the same community.

Best wishes Buddy.

 

[Blade56]

Thank you so much! Completely agree re: the treatments available today. Especially if identified early enough, MS can be managed properly so to not completely ruin your life.

We’re not Sheffield based but our neurologist in QMC Nottingham is first class. Full infusion number 1 booked in for Monday!

My wife is under Prof Sharak a leader in the field.

Watched a documentary last month on MS. He features with a cancer consultant at Hallamshire.

They were discussing their specialities and came up with the idea to use chemo to kill off the MS patients immune system and gave them a new one.

Early signs look very promising, actually talking of ’a cure’.

It might be on iPlayer BBC2 ‘Incredible Medicine’ series 1 episode 6

Having had a fair bit of experience feel free to DM me if there’s anything I can help with. To her and all your family. It’s scary at first.

 

[HighfieldBlade]

I got an email update from your charity event SwitchBLADE Smiles . Great effort mate

 

[fifty shades of blade]

My wife is under Prof Sharak a leader in the field.

Watched a documentary last month on MS. He features with a cancer consultant at Hallamshire.

They were discussing their specialities and came up with the idea to use chemo to kill off the MS patients immune system and gave them a new one.

Early signs look very promising, actually talking of ’a cure’.

It might be on iPlayer BBC2 ‘Incredible Medicine’ series 1 episode 6

Having had a fair bit of experience feel free to DM me if there’s anything I can help with. To her and all your family. It’s scary at first.

That's HSCT, it is now available on the NHS for some people with relapsing MS. It isn't a complete cure but for many it halts progression, or at least delays it significantly.

 

[SwitchBLADE Smiles]

I got an email update from your charity event SwitchBLADE Smiles . Great effort mate

Appreciate it mate, it was a fabulous day. Weather was very good & lots of people there just made it a brilliant thing to be part of. We’ll definitely be doing it again, perhaps in a different location next time.

 

[Blade56]

That's HSCT, it is now available on the NHS for some people with relapsing MS. It isn't a complete cure but for many it halts progression, or at least delays it significantly.

Hers was Beta Interferon